The core ENISNIP network is a collaboration between seven European clinical and basic research centers which focus on the rare disorders Hereditary Sensory and Autonomic Neuropathies (HSAN) and Congenital Insensitivity to Pain (CIP).
The patients and their families are represented by two patient advocacy organizations (PAOs).
In addition, ENISNIP collaborates with groups in the United Kingdom (University College London, Cambridge Institute for Medical Research), Belgium (University of Antwerp) and the United States (University of Miami).
Our network is funded by the European Joint Programme on Rare Diseases (EJP RD).
People
Katja Eggermann, Miriam Elbracht, Ingo Kurth, Annette Lischka
RWTH Aachen University Hospital
Jan Senderek
University Hospital, LMU Munich
Petra Lassuthová
Charles University, Prague
Michaela Auer-Grumbach
Medical University of Vienna
Thorsten Hornemann, Adam Majcher
University Hospital Zurich
Arman Cakar, Yesim Parman
Istanbul University Medical School
Michal Simunek
Patient advocacy organization Spolecnost C-M-T, Hradec Králové
Silvia Kendler
Patient advocacy organization CMT-Austria, Hohentauern
European Network on Inherited Sensory Neuropathies and Insensitivity to Pain 