Who we are

The core ENISNIP network is a collaboration between seven European clinical and basic research centers which focus on the rare disorders Hereditary Sensory and Autonomic Neuropathies (HSAN) and Congenital Insensitivity to Pain (CIP).
The patients and their families are represented by two patient advocacy organizations (PAOs).

In addition, ENISNIP collaborates with groups in the United Kingdom (University College London, Cambridge Institute for Medical Research), Belgium (University of Antwerp) and the United States (University of Miami).

Our network is funded by the European Joint Programme on Rare Diseases (EJP RD).

People

Katja Eggermann, Miriam Elbracht, Ingo Kurth, Annette Lischka
RWTH Aachen University Hospital

Jan Senderek
University Hospital, LMU Munich

Petra Lassuthová
Charles University, Prague

Michaela Auer-Grumbach
Medical University of Vienna

Thorsten Hornemann, Adam Majcher
University Hospital Zurich

Arman Cakar, Yesim Parman
Istanbul University Medical School

Michal Simunek
Patient advocacy organization Spolecnost C-M-T, Hradec Králové

Silvia Kendler
Patient advocacy organization CMT-Austria, Hohentauern